Tools for ageing well with traumatic brain injury

People with traumatic brain injury (TBI) have complex health needs, not only following their injury, but throughout their life, and these are made more complex in older age. People with cognitive impairment, including those with TBI, are often at a disadvantage with respect to voicing their health needs, navigating health care systems, and advocating for themselves with clinicians and funders. Providing tailored health information in plain language, with clear visual aids and principles of effective learning has been shown to improve health literacy. Better health literacy can lead to greater engagement with health services and supports, improved capacity for self-monitoring, prevention and self-management of health conditions, and better health behaviours. Ultimately, this can lead to improved health and quality of life, and reduced reliance on the health care system. Currently, there is a lack, both locally and internationally, of consumer-friendly resources providing consistent, evidence-based health information for people ageing with TBI. This study aims to: 1. Investigate the health information needs of people ageing with TBI, and their families 2. Describe the co-creation process leading to the development of “Tools for ageing well with TBI”